In testifying on a bill mandating a vast expansion of current newborn screening requirements, we urged adoption of an amendment that would continue to limit testing to only those diseases for which there is a medical benefit to the early detection and treatment of the disorder. Broad-based genetic testing not tied to any immediate benefit was, we argued, an infringement on familial privacy and raised the specter of a state-controlled genetic database. An amended version of the legislation which passed out of committee addressed these concerns. 

Sponsors

Senator Valerie Lawson

Status

Passed Senate Committee

Session

2021

Bill number

Position

Needs amendments