In testifying on a bill mandating a vast expansion of current newborn screening requirements, we urged adoption of an amendment that would continue to limit testing to only those diseases for which there is a medical benefit to the early detection and treatment of the disorder. Broad-based genetic testing not tied to any immediate benefit was, we argued, an infringement on familial privacy and raised the specter of a state-controlled genetic database.

Sponsors

Senator Valerie Lawson

Status

Held for Further Study

Session

2021

Bill number

Position

Needs amendments